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Let’s Talk about Dementia

Diverse Cymru’s BAME Dementia Project have today released their report into Dementia in BAME Communities. This project was established and developed by Suzanne Duval BEM.

You can download or view it here.

You can download or view this report in Welsh: Dewch inni Drafod Dementia

The report highlights recommendations arising from the event held in September 2019, including the following:

  • There needs to be more research by service providers into how BAME people in Wales experience dementia.
  • Service provision should be patient-centred and respect the dignity of the person with dementia.
  • Information on dementia and dementia related services should be provided in a range of formats.
  • more awareness raising and signposting around dementia and dementia services in BAME communities
  • Good practice and high quality care for people with dementia needs to be consistent across service providers.
  • There must be more support for carers

In 2019, an event was hosted as part of Diverse Cymru’s BAME Dementia Project. This project was established due to evidence that people from BAME communities are not accessing dementia services for a number of reasons. And a problem that already affects approximately 20-25,000 BAME people in the UK is expected to increase by seven or eight times that.

Within the event, wonderful speakers shared their experiences of caring for those with dementia, the value of stories, and of family. The Lord Mayor Councillor Daniel De’Ath highlighted the importance of good service, and Stevie Wonder’s beautiful ‘Yester Me Yester You, Yesterday’ capped off powerful stories of love, heartache, and hope delivered by Humie Webbe and Faith Walker. Mohammed Akhlak Rauf MBE traveled from Bradford to talk about his research, the role of culture, (both societal and service) and gave advice on the difficult conversations.

Taking work forward

Event organiser and BME Mental Health Manager at Diverse Cymru, Suzanne Duval BEM, said “It is clear that the needs of BAME people in Wales with Dementia are not being appropriately met. This event is part of taking this work forward and is a wonderful opportunity for the city of Cardiff to take a lead, and show how we respond to the challenge of positively acting upon the issues.”

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Diverse Cymru is a pan-Wales equality and diversity charity – working to ensure equality for all. Diverse Cymru’s vision is to help create a nation without prejudice or discrimination, where every person is equal and diversity is celebrated, and our mission is to eliminate discrimination and inequality.